Tuesday, September 29, 2009

The One Week Mark



It has been a week since John's initial diagnosis. We are doing our best to keep him as comfortable as possible, to run "defense" when needed so John can get much needed naps, to comfort him when he has to get "pokies". It can be easy to feel discouraged, but we are trying to stay positive. We are as focused as ever on getting John back to his healthy, active self, ready for more surf lessons with Uncle Brian.

John is doing very well from a medical stand point. But, the reality of his condition is also starting to hit him. He had many tears last night when he realized he was going to lose his hair.

We start our intensive training today for John's home care. We don't want to get our hopes up too much, but the hospital really does try to get patients home as soon as possible. They have to wait until we are comfortable administering the chemotherapy through his broviac line, and John needs to continue doing well. We have lots of faith that he will....



12 comments:

  1. Dear Mollie, Mike, John, Jimmy and Caroline,

    You are all so very brave. Our prayers continue to be with you.

    Love,

    Candy, Roger and Adam

    ReplyDelete
  2. Dear John,
    We really miss you here in the classroom and think you are so brave. We saw our cards hanging in your room. We will write to you again soon!
    "I hope you feel better soon!" Love Ryan
    "We want you back soon!" Samantha
    "We miss your fast thinking. PS. You're so good at math" Anna
    "We miss your big, smily face!" Hannah
    "The classroom feels empty without you!" Julia
    "You make everything more exciting! We miss you!" Reed
    "Everyday I look at your desk without you in it and then I miss you even more." Madi
    "I miss you helping me with my hard math. Sarah
    "Make sure you keep smiling!" Kimya
    "We aren't the same without you." Thalia
    "You are a great friend. Get well soon." Kaydee
    "Everything goes a lot better with you, John." Mason
    You're always there for me....come back soon!" Connor
    "We hope things are going well in the hospital." JP.
    "I hope you get better soon!" Holden
    "I'm sorry you have to be in the hospital. We miss you." Will
    "Come back soon!" Annabelle
    "You're a great friend. We miss you." Malin
    "We think about you everyday and miss you so much!" Love, Ms. Doyle
    "We miss you!" Love, Ms. Seldon
    Love, Room 5!

    ReplyDelete
  3. Dear John, You are such a "star." Just look at you on your surfboard. You'll be back up there before you know it. We just talked to your Grandfather, and he says you are doing well, and you are so strong and brave. We are coming up for the game on Saturday, and we should be rooting for the Trojans, but in our hearts, we are rooting for you, and your Bears. It should be a good game. We send our love to Mollie, Mike, Caroline, Jimmy and you. Carol and Bart Porter

    ReplyDelete
  4. Dear John,Great pictures of you always!You will always be my hero!I am always thinking of you & your wonderful family.Go Bears! Setz

    ReplyDelete
  5. Dear John,
    It's Casey. I am thinking of you always, and it is great to see you happy. Good luck!

    ReplyDelete
  6. John,
    You are missed at school. We are all thinking of you and knowing that you will come back better than ever.
    Mrs. Schultz
    p.s.the bears will cream USC on Saturday!

    ReplyDelete
  7. Today the kids were talking about wishes. After Chase said what he'd wish for, Reed said, "If I had one wish, it would be for John to feel better really fast."
    -Heather (and Reed)

    ReplyDelete
  8. Melissa ClemensSeptember 30, 2009

    John, I loved seeing you on "video chat" today. It made me realize how much I miss you. I can't wait to get back up to see you. I heard you creamed Grandpa and Aunt Kelly at Farkle. Keep practicing because I happen to be pretty good... Stay strong and brave for me. You make me so proud!

    ReplyDelete
  9. Hi Johnny. Tim's mom writing to say I love the stories your mom shares about your strength and courage. I feel lucky to be on your team and hope you can keep me on the roster along with the rest of the Tague crew!!! keep smiling :-)

    ReplyDelete
  10. Hi Johnny! I hear that you are having a great time with Uncle Geoff and Aunt Kelly. They said that you are the toughest kid they know. I want you to know that you have lots of people praying for your speedy recovery and thinking about you down in Newport. I can't wait to see you on Monday. I am hoping that we can have movie night and your mommy will let me have a slumber party with you. What's your favorite candy? You name it and I'll bring it! Huge hugs all around.
    Love you!
    Aunt Jillian

    ReplyDelete
  11. henderson family...October 01, 2009

    Johnny... it was so good to see you yesterday! Your CAL room is amazing... and I hear you're a Cubs fan now... don't forget about the A's! You are such a brave boy and I know you are helping all the other kids there be strong too. Can't wait for you to come home... go easy on the pringles. : )
    Love you... Joe's Mom

    ReplyDelete
  12. Dear John,
    All the guys on the playground really miss you and I can't wait until you are back playing kickball with me. My mom has been telling me about how brave you are and I am very proud to have you as a friend. I want to visit you and play uno with you. I got a funny blue and gold wig that I'm going to wear to the Cal game this weekend. You can borrow it if you want. I'll send you a picture.
    Love, Ryan O (and Sandra and Lauren)

    ReplyDelete